More information and contacts

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Updating of the fact sheets

The fact sheets were written or updated on the date shown at the end of each sheet.

NSW CID will update the fact sheets on our website each year.  If you have any suggestions for improvements or updates, please tell us – NSW CID’s contact details are at the foot of this page.

Advocacy for better health care

NSW CID advocates for change in service systems and the community so that people with intellectual disability can live better lives. Improved health care is one of our priorities. See the Advocacy section on our website.

Key contacts in other states

The fact sheets contain a lot of information that will be useful to readers in all parts of Australia.  They will be most useful for people in NSW because they talk about NSW services.   

In three other states, there are intellectual disability health centres which are good starting points for local information:

Melbourne - Centre for Developmental Disability Health
www.cddh.monash.org/people-with.htm
Phone (03) 9501 2400

Brisbane  – Queensland Centre for Intellectual and Developmental Disability
www.som.uq.edu.au/research/qcidd/default.asp
Phone (07) 3163 2412

Adelaide - Centre for Intellectual Disability Health
Phone (08) 8397 8100  

Information on health issues

General
Better Health Channel
Plain English fact sheets on a very wide range of health conditions and issues.
http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/LOne/Topics

Health Insite
Information on health conditions.
www.healthinsite.gov.au/ 

Child health
Raising children

Information for parents on health and other issues.
raisingchildren.net.au/

The Children’s Hospital at Westmead
Fact sheets for parents on health issues - includes some in community languages.
www.chw.edu.au/parents/factsheets/

Health of people with disability
Better Health Channel

Plain English fact sheets on disability/health issues.
www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/su_disability?open.

Centre for Developmental Disability Health
Information on health of people with intellectual and developmental disability.
www.cddh.monash.org/people-with.htm

Queensland Centre for Intellectual and Developmental Disability
Information on health of people with intellectual and developmental disability.
www.som.uq.edu.au/research/qcidd/default.asp

Centre for Disability Studies, Sydney
Information on health and other issues for people with intellectual and developmental disability.
www.cdds.med.usyd.edu.au

Department of Ageing, Disability and Home Care NSW
Policies and procedures for disability services on health issues.
www.dadhc.nsw.gov.au/dadhc/Publications+and+policies/

International Association for the Scientific Study of Intellectual Disabilities
Health guidelines for adults with an intellectual disability.
www.iassid.org/pdf/healthguidelines-2002.pdf

Other topics
Australian Indigenous Health InfoNet
www.healthinfonet.ecu.edu.au

National Rural Health Alliance
Fact sheets and other information on health in rural and remote areas.
http://nrha.ruralhealth.org.au/?IntCatId=14

Key references for health professionals

Management Guidelines, Developmental Disability
A practical text for health professionals.
www.tg.org.au

Health Care in People with Intellectual Disability: Guidelines for General Practitioners
Centre for Developmental Disability Studies.
www.cdds.med.usyd.edu.au/html/PDF/HealthCare_in_People_withID_Guidelines.pdf