“I feel like we are on a crest of a wave, and whatever we do in this period of time creates what this is going to be.”

For our My Choice Matters workshop facilitator Tammy Burnstock the introduction of the National Disability Insurance Scheme represented a huge opportunity for change for people with disabilities, and she knew early on that she wanted to be a part of that change.

It was a cold 4 degrees early Saturday morning in Albury. 

Myself, a Community Engagement Officer for NSW CID and the My Choice Matters (MCM) project along with Eban Pollard MCM Projects Officer decided to brave the walk, setting out while it was still dark.

We were about to witness the outcome of Jan Gouma’s “dream” project – people with disability joining a throng of passengers to ride big hot air balloons, to fly to Rutherglen some 50 kilometres away, something they probably never thought was a possibility.

Ben Felten is one inspiring guy! He recently smashed the Australian Speed Week record for fastest speed for a motorcycle ridden blindfolded. 


People living in Ageing, Disability and Home Care group homes across the state and their families are dismayed at losing the small amount of influence they were promised in determining their new service provider.

Congratulations are in order! NSW Council for Intellectual Disability Board Member Robert Strike has been selected to attend high level talks on issues affecting people with disability at the United Nations in New York in June.

Media Release: Friday 31 March 2017 

The solutions to ending deadly disability discrimination in the health system are clear, and the NSW Government must act by committing funds to expand successful programs and protect disability health services from the axe.

MEDIA RELEASE: Friday 31 March 2017

A parliamentary forum will today shed light on the deadly cost of disability discrimination in the NSW health system and what can be done to prevent cracks in disability health from widening.

Can you call your Local Member of Parliament (MP) and invite them personally to our Parliamentary Forum?

Thanks to your support we have been able to organise a Parliamentary Forum, which will focus on the very high rates of preventable deaths for people with intellectual disability. The forum will be held on Friday 31 March at 12 noon in Parliament House.

Friday 31 March 2017

A parliamentary forum will today shed light on the deadly cost of disability discrimination in the NSW health system and what can be done to prevent cracks in disability health from widening.

Did you know the NSW Government has no plans to fund state based advocacy services beyond the middle of 2018?

This includes services like IDRS, Disability Advocacy NSW and NSW CID.


Call for a Clean Bill of Health for People with Intellectual Disability

Can you help stop Deadly Disability Discrimination by phoning, emailing or writing to Minister Hazzard?

We want the Minister to urgently fund solutions to end preventable deaths for people with intellectual disability. Every minute we delay more lives are put at risk.

Dear Minister Williams,

Today is the first day of Parliament for 2017 and you will commence in your new role as Minister of Disability Services. This is a very important position as you are now responsible for defending and upholding the human rights of all people with intellectual disability in NSW.

Michelle was outgoing and friendly, an accomplished horse rider and much loved by her family and community. Devastatingly, Michelle was just 28 years old when she died, due to meningitis going undiagnosed during a hospital admission.

Her mother Maureen McIlquhan makes this heartfelt plea – “discrimination against patients with intellectual disability has to stop.”

Will you join Maureen and NSW CID to end the deadly cost of disability discrimination?

NSW CID calls on the NSW Government to take immediate action on a landmark study from the University of New South Wales, which shows that people with intellectual disability are more than twice as likely to have preventable deaths as other members of the community. 

Bullying and diversity through language: a new way of thinking about this issue

Through this paper, NSW Council of Intellectual Disability Chairperson, Michael Sullivan identifies language as a key area on which we need to concentrate where action and thoughts are reflected. Language can shape, although we can be much more precise about language.

The NDIS legislation is about people with substantial disability having an enforceable right to “reasonable and necessary support” and having “choice and control” over how that support is provided and who provides it. It is a fundamental step forward in increasing the availability and individual focus of this support for people with disabilities in Australia.

Book cover

Reviewed by Jim Simpson, NSW CID advocate.

Jeremy Ward's personal memoir of raising a child with a disability, The Shouted Goodbye is the story of his daughter, Mena, who grabbed all of life’s opportunities, and his and his wife's determination that she have a full and inclusive life.

This is a must-read book for anyone who believes in a fully inclusive world for people with disabilities. It should also be compulsory reading for the many teachers, disability workers, bureaucrats and politicians who need to better understand and embrace this vision.

Picture of forum booklet with group of people

"I know saying good and ordinary sounds like they don’t go together, but they do. People with intellectual disability just want a good ordinary life, like anybody else."

Last week our Chairperson, Michael Sullivan, was the key note speaker at the Ombudsman Forum - Addressing the abuse, neglect and exploitation of people with disability. Michael delivered an important and powerful speech and raised his voice to speak up on behalf of so many who haven’t been able to. As part of our Speak Up series we are featuring Michael's speech.

Will you speak up about mental health? 

Nothing says 60th birthday party like colourful wigs, glitter capes, inspiring speeches and a pumping dance floor. And this is exactly how we celebrated NSW CID turning 60.


Improving Mental Health in Children with Autism and Intellectual Disability

NSW CID is pleased to share presentations from our recent conference Challenge Change Create.


As the process unfolds for transfer of ADHC disability services to the non-government sector, NSW CID continues to see two safeguards as vital:

There’s more than over 400,000 people with intellectual disability in Australia.

CID Conference Sneak Peek!

We did it!

Parties commit on the health of people with intellectual disability!

My name is Melinda Nay. I am 18 years old.

Using PBS in Australian disability services

CID takes National Action on Health

Transfer of NSW government disability services to the non-government sector

Swallowing Difficulty and People with Intellectual Disability – Part 3

Swallowing - 5 Facts for People with Intellectual Disability

Swallowing Difficulty and People with Intellectual Disability – Part 1

My House

Transfer of NSW government disability services to the non-government sector

Information, Linkages & Capacity Building Commissioning Framework

A chat with our Chairperson Michael Sullivan on World Down Syndrome Day 2016.

So what happened with our ADHC Position Statement?

Creating Positive Change

My Health Record – opt out trials in Nepean Blue Mountains and North Queensland

ph. 1800 424 065       email: info@nswcid.org.au

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